One aspect of CFS I find the most frustrating is not people who don't understand what CFS is, but people who almost resist trying to understand what CFS is.
I don't expect anyone to spend hours reading about CFS on the Internet. What I can't stand is when people ask: "What's wrong with you, exactly?" over and over again. And when I say "I have chronic fatigue syndrome" and explain it to them, they dismiss what I have to say, and ask me the same question again in a few months' time! It's thoroughly frustrating. At least five people I know are regular culprits of this.
One that I'll call "H" is the most exasperating to deal with. She cares about me, but she doesn't seem to realise just now debilitating CFS is. She seems to think that I'm just depressed. And that is the most annoying attitude anyone can deal with.
Not only do I have a mysterious, invisible, debilitating disease; I have to battle with people who think I'm just depressed as well.
Thursday, 14 August 2008
Why CFS is thoroughly frustrating
Labels:
CFS,
chronic fatigue syndrome,
dealing,
friends,
M.E.,
myalgic encephalomyelitis
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